Running for Rare Disease, Running for FOP, Running for AJ
Type
Blog Post
Published
Sept. 15, 2016, 2:30 p.m.
...patient partners so that they can help tell their stories. I was paired with a six-year-old boy named AJ ...caused by a single R206H point mutation on the receptor ACVR1. ACVR1 triggers appropriate bone regeneration...where my wife Lianna has made her career as Senior Director of Biology, is helping us fight against FOP in...